Parkinson's Disease Treatment - STALEVO
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Parkinson's Disease Management Tips
  "You might find a bath mitt and soap-on-a-rope easier to use than a washcloth and a bar of soap (make your own--put a bar of soap in a nylon stocking with one end tied to a towel bar)."  
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information for caregivers
Resources For Caregivers
There are many resources available that address caregiving, and services and programs to help you manage in your role as caregiver: check libraries, bookstores, and the Internet for general advice on caregiving and Parkinson's disease.

Try and investigate community resources such as hospitals, colleges, adult education centers and service organizations—they may offer courses on caregiving and additional information on resources that you can turn to for help.

A medical professional can also provide you with information. Ask your doctor or other professional healthcare providers if you have questions and don't be afraid to admit that you don't understand what they are telling you. Use a tape recorder (with consent) or a pen and paper to write down what they tell you during the sessions so you can review the information later.

You may find it beneficial to join a caregiver support group—these groups provide a forum for caregivers to come together and share their feelings in a supportive environment. Participating in a support group can help you manage stress, exchange experiences and improve your skills as a caregiver.
Parkinson's Disease Societies
The following list of societies offer advice and support on how to deal with the many challenges of caring for someone with Parkinson's disease:




Healthcare Professional Visit Checklist Questions to Ask Your Healthcare Professional
Bullet National Parkinson Foundation (NPF)
www.parkinson.org

Bullet World PD Association
www.wpda.org

Bullet Parkinson's Association of Louisiana
www.parkinsonsassnoflouisiana.org
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Web Sites
The following Web sites offer extensive education and support services for caregivers:
Bullet National Parkinson Foundation, Inc.
www.parkinson.org

Bullet National Family Caregivers Association
www.nfcacares.org

Bullet National Alliance for caregiving
www.caregiving.org

Bullet Empowering caregivers
www.care-givers.com

Bullet Well spouse organization
www.wellspouse.org

Bullet CARE
www.geocities.com/pdcaregiver

Bullet National Parkinson Foundation: Caregivers Forum
www.parkinsonscare.com

Bullet Caregiver survival resources
www.caregiver911.com

Bullet Parkinson's disease: Caring and coping
www.parkinson.org/care4.htm

Bullet The Parkinson patient at home
www.cnsonline.org/www/archive/parkins/park-02.html

Bullet The caregivers handbook
www.acsu.buffalo.edu/~drstall/hndbk0.html

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